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Chronic Health Conditions Discussion and Support

demtenjeep

(31,997 posts)

2. I would be curious as to the Crohn's treatment

Reply to mopinko (Original post)

Sat May 5, 2012, 10:44 PM

May 2012

I have been having infusions for about 3 years now. I am on the shortest time span allowed with the maximum dosage allowed with Solucortef in addition. I am afraid that we will be hitting a wall soon and I don't know what will happen. I do believe that I would be dead without the infusions.

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anybody been to mayo? [View all] mopinko May 2012 OP

we went years ago for the hubs. We stayed at a place that had Famous Dave's BBQ attached to it demtenjeep May 2012 #1

I would be curious as to the Crohn's treatment demtenjeep May 2012 #2

are you talking about remicade? mopinko May 2012 #3

yes, I was started on it 3 years ago demtenjeep May 2012 #4

eeesh. mopinko May 2012 #5

yes it does demtenjeep May 2012 #6

Ironically, we were there on the day you posted this Ms. Toad Jun 2012 #7

weird. mopinko Jun 2012 #8

Mine is 21 Ms. Toad Jun 2012 #9

well, here we are. mopinko Jul 2012 #10

Thinking of you today and hoping for the best! hedgehog Jul 2012 #11

the hubs says he will take me to Mayo for my Crohn's but I tell him I don't think anymore could be demtenjeep Jul 2012 #12

found here guts to be great (tho slow) but mopinko Aug 2012 #13

If they weren't willing to send you to one of their rheumotologists hedgehog Aug 2012 #16

they were thinking mopinko Aug 2012 #17

seems to me you might be eligible for the bone marrow trials. mopinko Aug 2012 #14

I hadn't thought of that, I will talk to my GI doc next month if I don't see him before then demtenjeep Aug 2012 #15