Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Chronic Health Conditions Discussion and Support

mopinko

(72,817 posts) Fri May 4, 2012, 05:40 PM May 2012

anybody been to mayo? [View all]

my youngest is going in july. she has chron's, which has been difficult to treat. also has fibro, and autonomic dysfunction. struggling with depression as well. few other oddball things.

just wondering if folks have any advice, or can recommend good restaurants in rochester, or....

17 replies

= new reply since forum marked as read

Highlight:

anybody been to mayo? [View all] mopinko May 2012 OP

we went years ago for the hubs. We stayed at a place that had Famous Dave's BBQ attached to it demtenjeep May 2012 #1

I would be curious as to the Crohn's treatment demtenjeep May 2012 #2

are you talking about remicade? mopinko May 2012 #3

yes, I was started on it 3 years ago demtenjeep May 2012 #4

eeesh. mopinko May 2012 #5

yes it does demtenjeep May 2012 #6

Ironically, we were there on the day you posted this Ms. Toad Jun 2012 #7

weird. mopinko Jun 2012 #8

Mine is 21 Ms. Toad Jun 2012 #9

well, here we are. mopinko Jul 2012 #10

Thinking of you today and hoping for the best! hedgehog Jul 2012 #11

the hubs says he will take me to Mayo for my Crohn's but I tell him I don't think anymore could be demtenjeep Jul 2012 #12

found here guts to be great (tho slow) but mopinko Aug 2012 #13

If they weren't willing to send you to one of their rheumotologists hedgehog Aug 2012 #16

they were thinking mopinko Aug 2012 #17

seems to me you might be eligible for the bone marrow trials. mopinko Aug 2012 #14

I hadn't thought of that, I will talk to my GI doc next month if I don't see him before then demtenjeep Aug 2012 #15