Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search
 

cyberpj

(10,794 posts)
Thu Jan 19, 2012, 02:10 PM Jan 2012

Hey, I found youse! Newbie to this thread. I have M.S. & want to know if others have tried Ampyra? [View all]

Quick background:
First symptom in 1985 - optic neuritis, then
off and on tingles, numbness and migraines for 10 years before
Diagnosis in 1995 - left side spasticity and foot drop/leg drag and finally plaques showing on MRI
Betaseron for 10 years, then rising liver enzymes so I tried Copaxone but had heart palps that scared me off
Took nothing for 2 years but was getting weaker and worse
By then liver enzymes were normal again so it was back to Betaseron again for last 3 years; no probs yet
Also taking antidepressants since depression started with initial Betaseron therapy.
Tried ADD med Adderall for fatigue but it's effectiveness faded over time.

Now my neuro wants me to try Ampyra but I'm hesitant due to costs ($1000 or so per month) and also because it lists kidney and UTI issues... I had cancer of the kidney back in the late 70's and they took the whole thing out with some lymph nodes but I've been fine since then. Neuro says kidney function bloodwork is fine and I should go for it but I'm still hesitant because of 50/50 reviews by users and it's so new to the market (only since Jan. 2010 - and we all know how thorough and strict our FDA is, right?)

Anyone here with M.S. try it yet?

p.s.

6 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»Hey, I found youse! Newbi...»Reply #0