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Chronic Health Conditions Discussion and Support

LiberalLoner

(11,207 posts)

13. Update: Saw neuros (team of 4) on Thursday and..

Reply to LiberalLoner (Original post)

Tue Mar 12, 2013, 10:18 AM

Mar 2013

I have one extremely large lesion on my spinal cord, two small ones in my brain. Oligoclonal bands in my LP done during my last bad spell. Clinical signs support either NMO or MS.

So they are trying to figure out if it's NMO/Devic's syndrome or if it's just MS.

After reading up about NMO I'm hoping it's just MS but I have to admit my symptoms and history and MRI findings point more towards NMO. Oh, well.

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Turns out I have Multiple Sclerosis, not GBS or CIDP. Well, at least I have a diagnosis now. [View all] LiberalLoner Mar 2013 OP

Maintenance therapy can stop the autoimmune attacks Downwinder Mar 2013 #1

Bad news: it's incurable. Good news: it's treatable Warpy Mar 2013 #2

Thanks u guys! It feels good to have a diagnosis finally because LiberalLoner Mar 2013 #3

You might not need the full walker, it's a PIA to deal with Warpy Mar 2013 #4

Went through that "It's all in your head bit" for twenty years. Downwinder Mar 2013 #5

I get "free" healthcare via the military, so no worries about cost. LiberalLoner Mar 2013 #10

Lost the feeling in one hand, couldn't find the hand Downwinder Mar 2013 #11

Well Said ProfessorGAC Mar 2013 #12

Good luck to you deek Mar 2013 #6

Thank you! LiberalLoner Mar 2013 #9

I am new here nana sew dear Mar 2013 #7

Thank you so much! I am a vet, was in the first Gulf War LiberalLoner Mar 2013 #8

Update: Saw neuros (team of 4) on Thursday and.. LiberalLoner Mar 2013 #13

I dignosed myself via the internet and the symptoms I was having back in '97 benld74 Apr 2013 #14

This message was self-deleted by its author ProfessorGAC Apr 2013 #15