Diagnosis-rare form of non Hodgkin's lymphoma

[pangaia]

6. You are very welcome.

Sounds like you are doing well having a 'buddy.' That is REALLY GREAT!
I found something similar through the Leukemia & Lymphoma Society.
Here are some contacts for them They were very helpful to me.

http://www.lls.org/
:: Beatrice Abetti, LCSW | Information Specialist, Information Resource Center

:: The Leukemia & Lymphoma Society | 1311 Mamaroneck Avenue, White
Plains NY, 10605
:: P: 914.821.8923 | F: 914.821.3723 | www.lls.org | [e-mail]

:: Information Resource Center: 1-800-955-4572

I just read the info at the Lymphoma research Foundation about angioimmunoblastic TCell non Hodgkin's lymphoma. It does look like your type and stage of the disease is more difficult to 'cure' than mine. So what. That's what I would say to it.

One of my 'buddies' with whom I talked in 2012 had had stage 4 diffuse large b cell lymphoma about 12-15 years ago, when the treatment was not as good even as now. He had it all over, stage 4, cancerous nodes everywhere, cancer in his brain, etc.. He's doing fine.
So I think first, a positive attitude is really important (easy for me to say, I know). to not become 'attached' to it. If you can't beat it, you can't, so why worry. And if you can, you can, so ....why worry.

One thing having cancer did for me was to 'slow' my life down. And in slowing it down, I have more time.... Like a baseball player--It has been said that the most difficult thing to do in sports is to hit a baseball. If a batter can slow the game down, the ball looks like a huge beach ball slowly floating in toward him, instead of coming in at 95mph. He has forever to pick it up leaving the pitcher's hand, forever to pick up the spin so he knows what kind of pitch it is-fastball, curve, slider, change-up - forever to decide to swing or not, and forever to swing. Instead of having 4/10ths of a second to do all those things, he has hours! So my life has become longer than before.

The cancer center where you are going should DEFINITELY give you info on local support groups.

One thing, don't go Googling 'cancer,' or whatever. When I first did a search for my spinal tumor it really freaked me out. Big mistake. Somewhere it said I had like 6 months, tops. Don't read that stuff.. Although, the Lymphoma research Society info looks fairly good.

I don't know where you are, the quality of cancer treatment there, etc. But, the more experienced doctors you can get the better. I was lucky as mine were top notch. In fact some of the info on the LLS website was written by Jonathan W. Friedberg, MD and Lynn Rich, MS, NP. who are at Strong Hospital. Lynn, in fact, did my bone marrow biopsy. (BTW- I also had 4 lumbar punctures. Just in case you have to have one--they give you lidocaine so not bad at all.)

And take my comment about junk food with a grain of salt.
Having Leukemia and going through chemo means you want to do everything you can to strengthen your immune system. Lots of veggies, a probiotic is good. Don't trust doctors to know much about diet.

OK.. enough for now, Don't want to tire you brain. :&gt

Keep in touch and eat lots of spinach...