Cancer Support
Related: About this forumNeed some good vibes
Last edited Wed May 28, 2025, 03:25 PM - Edit history (2)
Having a very bad day. Awhile back I posted about my son's ACC cancer. It's back and there are no further treatments. Cancer doc said it was time for palitive care. It is skull base and infiltrating his orbital nerves affecting his sight and he can no longer drive. He lives in Washington and I'm in the Sacramento area
I traveled to take him to his doc appointment and bring him home with me. So we can help him with medical needs. Packed up his car to make the trip down. We got as far as klamath Falls and the transmission went out, quote to fix was more than 8 grand (thanks tfg). So am in a hotel waiting for hubby to get to pick us up.
So good vibes would be greatly appreciated
Thanks P
Edited to add:
I want to thank all of you for the outpouring of love, prayers and positive vibes. You kept me calm while waiting for hubby (lame54) to arrive. Thank you again.
Edited to add:
We are finally on our way home. Once I get him settled in, we will start the process of transferring his medical care. The one good thing about this cancer is it is slow growing. So we still have some time. The only functions he has lost is site in one eye, but still has blurred vision in the other and hearing in one ear. This cancer sets up shop in the nerves making it difficult to treat but slow progression. He was diagnosed in 2016 with two surgeries and two rounds of different types of radiation.
We knew the time would come when no further treatments would be available.
I want to thank you all for being there and getting me through a very difficult time
Bless you all and I will keep the cancer group updated as to his progress.
Patricia

SheltieLover
(68,596 posts)
Lifeafter70
(535 posts)It has been a rough two weeks. Tumor growth is bad enough but this car crap is just one more thing to deal with. I'm lucky to have a supportive hubby.
serbbral
(317 posts)((((HUGS))))
Lifeafter70
(535 posts)SheltieLover
(68,596 posts)
elleng
(139,596 posts)`````````````````````````````````````````````````````````````````````````````````````````````````````````````````````````````
Hubby should get here this evening and than we can figure out what to do with his car. It's been a rough few weeks.
dgauss
(1,319 posts)Karadeniz
(24,467 posts)Lifeafter70
(535 posts)mgardener
(2,035 posts)Thoughts and prayers. Not the Republican kind.
Thanks for prayers and that much needed laugh.
BaronChocula
(2,774 posts)Hope you both are able to rest comfortably at least.
Lifeafter70
(535 posts)There was an inexpensive hotel across from where car was towed and walking distance to a grocery store. Hubby should get here this evening and we will figure out what to do with my son's car. Not worth fixing. I was shocked by the quote of 8 grand just for the transmission. After calling around f found out it was an average cost. We couldn't find a used or rebuilt only a new one.
soldierant
(8,569 posts)I've been there - so long ago that the price, which was between 1000 and1500, would probably be 8000 adjusted for inflation. But at least for me it was just the car I didn't have a family member in distress along with it. My heart is with you.
Lifeafter70
(535 posts)But than I thought just a car
My son was upset cause that was the only thing he had left. Than he laughed and said "mom I can't see so why do I need a car. One less insurance bill".
soldierant
(8,569 posts)I love his attitude. Lemonade from lemons next level.
AllaN01Bear
(25,322 posts)
Lifeafter70
(535 posts)You guys are keeping my spirits while waiting for hubby to get here.
choie
(5,527 posts)and sending healing vibes.
Lifeafter70
(535 posts)Grim Chieftain
(183 posts)Your son and your family are in my thoughts.
Lifeafter70
(535 posts)Dem2theMax
(10,687 posts)Your DU family is here for you.
Lifeafter70
(535 posts)godsentme
(141 posts)Sending heartfelt thoughts and prayers. And, like the other poster said, "Not the Republican kind". Blessings to your family.
Lifeafter70
(535 posts)marble falls
(65,691 posts)Lifeafter70
(535 posts)Cancer sucks that's for sure. We knew this time would eventually come. ACC is incurable but slow growing because it travels along the nerves. I'm grateful that when he had gamma knife in 2021. It gave a few years of quality life. His cancer doc was disappointing but radiation doc is referring him for a second opinion. Chemo doesn't work for this type of cancer but there are hopeful clinical trials. Not giving up yet he is only 48.
How are you doing? I have been following your post.
marble falls
(65,691 posts)... fortune than we were told to expect. Cancer cure advances have really been happening in the last ten years. There's a miracle out there for everyone, the trick is finding that one treatment that will work for him.
My bladder cancer would not respond to either chemo or radiation. I was left with one solution, surgery. I opted for the option three, the most radical solution, but after almost eight years I was not fooling around. Between colon cancer surgery in 2017 and the series of three tumorectomies, two courses of BCG infusions - I felt we had to just plain get at it. And it worked, June 19 is six years since my last surgery and I was told last year that there was no evidence of a cancer cell in me.
Your support to your son is the best therapy he can get. I have an idea of how invested in your son's health you are, my wife deserves sainthood for all she's done and put up with, I know you're on the list, too.
Please, all you all feel free to contact me if you ever need some cheering on. My wife would be glad to talk to you, too.
Lifeafter70
(535 posts)It does get overwhelming at times but my husband and family are a great support system. I will keep in touch after we get through the next doc appointment. We are waiting on referrals. Just got this news last Thursday.
marble falls
(65,691 posts)Permanut
(7,120 posts)Lifeafter70
(535 posts)stillcool
(33,940 posts)Lifeafter70
(535 posts)This thread is keeping calm and busy waiting for hubby to get here.
democrank
(11,489 posts)We are here for you.
Lifeafter70
(535 posts)Clouds Passing
(4,956 posts)Lifeafter70
(535 posts)justcheckinin
(16 posts)Your love matters more than anything else. Being there...
Lifeafter70
(535 posts)You guys are great. You have kept me calm while sitting in this hotel room waiting for hubby to get here.
Nigrum Cattus
(558 posts)sharing your love now will become the greatest gift
you will ever give or receive
https://www.mariecurie.org.uk/professionals/palliative-care-knowledge-zone/supporting-family-friends
LoisB
(10,604 posts)
Thanks
wordstroken
(1,185 posts)way to bring you and your son home.
You also have the gentle and loving support of our awesome DU family who are always there with you sitting on you shoulder whispering in your ear words of encouragement and to cheer you on.
Sending you hugs and love good vibes.
Please keep us posted.
🦋 wordstroken
Lifeafter70
(535 posts)It's a five hour drive from Sacramento to klamoth Falls. He should be here in an hour. Thank you all so much for keeping occupied and all the loving vibes
Tanuki
(15,894 posts)Please do get that second opinion!
Lifeafter70
(535 posts)Yes not ready to give up.
virgdem
(2,258 posts)Lifeafter70
(535 posts)Figarosmom
(5,908 posts)I know things won't get better but going to plan would be good. Make the most of the time you have with your son and don't let yourself become overwhelmed.
Good vibes coming your way.
Lifeafter70
(535 posts)cachukis
(3,259 posts)Blue Owl
(56,362 posts)
Lifeafter70
(535 posts)BeneteauBum
(146 posts)There are a lot of outcomes that are deemed miraculous. My hope for your son, you, and your husband. Things will work out
..dont lose your positive outlook.
Peace ☮️
Lifeafter70
(535 posts)Thank you all
jmbar2
(6,888 posts)ACC is a very bad cancer. I hope that the palliative care will make his remaining time on the planet manageable. You are both blessed to be able to spend it together.
I had to ditch my camper van because of the transmission repair cost. Gotta say, it was a relief to get down to one vehicle. I don't know if you son needs a tax deduction, but the public radio/tv station in Klamath Falls might take it as a donation.
May peace be with you.
Lifeafter70
(535 posts)Have to wait til morning for slavage yards to open. Hubby got here a couple of hours ago, so we are now longer stranded. My son is a little depressed cause it was all he had left after his divorce. She couldn't handle the cancer and what his two surgeries did to his face.
Not too many people even know what ACC cancer is.
We will get through this.
I will be grateful forever to all of you on DU. Tour outpouring of love got me through a very difficult day.
skylucy
(3,932 posts)
Lifeafter70
(535 posts)NCgayguy
(140 posts)Dear Lifeafter70,
I wish you much love and will keep you in my thoughts. I wish you were close enough that I could offer help. I'm glad you have your husband to help you manage the care of your son, I know it will be 24 hour, around the clock care. Holding a Presence is more important now that ever. You've raised him and now you will give him his final care. May I say 'Thank you!" for being such a great mom? Please keep us informed as time allows.
Sincerely,
Reis
calimary
(86,464 posts)To your son and your whole family.
Lifeafter70
(535 posts)We are finally on the way home. I will take some deep breaths and start the long process of transferring his medical care
Pain medications are the most difficult.
At least he will be closer to his kids who live in Reno.
niyad
(123,908 posts)Lifeafter70
(535 posts)TygrBright
(21,145 posts)Lifeafter70
(535 posts)We are finally on our way home.
Wicked Blue
(7,981 posts)Lifeafter70
(535 posts)Danmel
(5,438 posts)Sending hugs.
mwmisses4289
(1,130 posts)Lifeafter70
(535 posts)Bayard
(25,277 posts)Best to both of you, and your family. Hugs!
SheltieLover
(68,596 posts)