Update
So I'm 4 treatments and a CT scan into chemo. Every treatment brings new problems. The first 3 rounds had difficulties (oral thrush was the worst) but were totally worth it. Dose 4 was a whole new level. I was so sick I couldn't eat anything but a few saltines for a week, ultimately fainted a few times and ended up in the hospital on IV NaCl and antibiotics. I'm OK now, eating and all, but have no energy whatsoever. They've delayed my next chemo session for 2 weeks and lowered the dose. Fingers crossed.
On the positive side, the two primary tumors have shrunk, so the doctor who asked me if I had considered palliative care now thinks I should continue with the chemo. (The third tumor was in a lymph node and all my lymph nodes are swollen right now so no actual information on how that's going).
Thank you to everyone who sent positive thoughts and prayers. ❤️🩹
= new reply since forum marked as read
How are you doing right now? What's the status of the lymph nodes?
I know how awful it can be, and I empathize completely! I keep a journal and just noticed that it was one year ago when I had to skip a treatment and lower my dose because my blood "numbers" looked bad.
Right now, I'm awaiting yesterday's CT-Scan results, expecting to get chemo tomorrow if nothing terrible shows up. I'm coughing and tired beyond description. There should be a new word for that feeling of "no energy," right? Or on the brighter side, the opposite. I like to remember being a kid and having that ridiculous abundance of energy when running around outside was just normal, and unstoppable! Were you that way? It makes me smile to think of it! 