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JMCKUSICK

(2,396 posts)
Thu May 22, 2025, 11:15 AM Yesterday

I'm really really scared

I surely thought that the close divide in the House would derail this bill as I really expected the moderates to control the outcome, not the crazies. We all know this is going to sail through the Senate after some grandstanding by those who will vote for it anyway.
I'm struggling with so much uncertainty, I can't work but no one seems to give a shit from the SSA to Congress. I feel like I will be one of millions that will be discarded to the curb and forgotten about.
I've struggled with self esteem my whole life, abandonment issues, bouncing from home to home as a child to the point that I have no idea the names of a single family I lived with before coming to the USA.
Every time I feel like I've made progress in trusting and allowing myself to get comfortably close to others, moments like this happen, a lightning bolt from the sky reminding me of my true place in society.
I have fought like hell to "outperform" what little was expected from an uneducated, lonely, lost person who can only be defined by external forces because nobody ever really allowed me to define myself through support, encouragement and embrace.
I've been sitting here all morning trying not to cry, trying to keep this despondency at bay, knowing this day was coming but praying it wouldn't.
Medicaid has literally saved my life, and the medications I now have to take are just as critical to my ongoing health. My pain levels since the FAA on May 9th, has been off the charts, I obviously aggravated my spinal injuries that weekend and that's not helping either.

https://www.gofundme.com/f/help-john-mckusick-overcome-health-and-financial-struggles

I am placing my GoFundMe link here because July will be here faster than we all care to admit and while I consider you all my family, I feel like the Ocean currents of life will relegate me back to tumbleweed status where my life's shortened span will be lived aimlessly and helplessly wandering wondering why this is my destiny. Even before my Heart Surgery, during my down days I wondered if I'd be better off dead, because we all knew this was coming and if I wasn't such a coward, i would have stopped this train a long long time ago.
I'm sorry, I feel like I'm falling down a deep hole called destiny.
Most people are too busy to stop and help, much less ask what they can do.
Even good morning messages, as poor as they may be, are the easiest things to pass by in our rush to encounter the day..
I can't stop crying and I can't stop feeling how inevitable this destiny is for so many of us. I wish I could just fall asleep and wake up in whatever nightmare my soul has to face next.

58 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
I'm really really scared (Original Post) JMCKUSICK Yesterday OP
... SheltieLover Yesterday #1
Thank you for the Hug SheltieLover. JMCKUSICK Yesterday #18
I got bdamomma 23 hrs ago #43
Thank you bdamomma. JMCKUSICK 23 hrs ago #46
Here's another MustLoveBeagles 23 hrs ago #45
Thank you MustLoveBeagles JMCKUSICK 23 hrs ago #47
I doubt it'll pass thru te Senate as is. There's talk of splitting it into 3 bills... brush Yesterday #2
I got a AARP membership invite JMCKUSICK Yesterday #3
as of now any one over 65 will get a 4K deduction NT Tickle Yesterday #6
How so? I keep hearing SS benefits are going to be cut. brush Yesterday #8
Not for Seniors, so I have heard NT Tickle Yesterday #33
We've heard the exact opposite. brush Yesterday #39
Lol. 4k. haele Yesterday #13
it works for me Tickle Yesterday #34
an extra $4000 deduction would translate into a reduction of tax owed by $400 to $500 at most. Wiz Imp Yesterday #36
That $400 will be the increase on food. Meadowoak 18 hrs ago #51
Yep. The whole thing is an attempt to fool the public into think they're getting a much better deal than they really are Wiz Imp 8 hrs ago #57
Right haele, JMCKUSICK 18 hrs ago #49
I saw that when I googled AARP JMCKUSICK Yesterday #29
A major part of my fear JMCKUSICK Yesterday #19
Agree debm55 Yesterday #41
Oh John. Your despair is testimony that you are a deeply sensitive, smart and caring person. Hold steady to your worth. Nanuke Yesterday #4
Thank you Nanuke, JMCKUSICK Yesterday #21
Thank you bdamomma 23 hrs ago #44
I'm scared for you too Arazi Yesterday #5
Thank you for your support Arazi JMCKUSICK Yesterday #30
I don't think he'll mess with senior benefits Tickle Yesterday #7
I'm 58 and have been waiting on SSDI for 21 months and counting JMCKUSICK Yesterday #9
It took me 21 years to get approved synni Yesterday #11
I'm so sorry, I can't JMCKUSICK Yesterday #31
you'll be getting one hell of a check! Tickle Yesterday #35
Best of Luck getting your SSI Cha 17 hrs ago #55
Ditto SuzyandPuffpuff Yesterday #10
Speaking of fighting, I was so disappointed to JMCKUSICK 18 hrs ago #50
I'm scared too XanaDUer2 Yesterday #12
I know you can relate XanaDUer2 JMCKUSICK Yesterday #14
My heart goes out to you, John. Love, Debbie. debm55 Yesterday #15
Thank you Debbie JMCKUSICK Yesterday #23
Right there with you mvd Yesterday #16
The thing that I'm also JMCKUSICK Yesterday #25
I really hope you are wrong about the Senate. SSJVegeta Yesterday #17
For obvious reasons I hope so too SSJVegeta. JMCKUSICK 23 hrs ago #42
Just hours after House passage, senators are already talking about big changes. Wiz Imp Yesterday #20
I sure hope you're right Wiz Imp. JMCKUSICK Yesterday #22
oh, make no mistake, Whatever eventually gets signed into law is going to be really awful Wiz Imp Yesterday #32
They can go shove this big beautiful bill straight up their big beautiful asses! Initech Yesterday #24
A bit of good news, gab13by13 Yesterday #26
We need four right? JMCKUSICK Yesterday #27
It's a start, gab13by13 Yesterday #28
That's true gab13by13 JMCKUSICK Yesterday #40
So sorry sending you hugs Meowmee Yesterday #37
Thank you Meowmee, JMCKUSICK Yesterday #38
I'm scared, too Delmette2.0 20 hrs ago #48
We are comrades in arms Delmette2.0 JMCKUSICK 18 hrs ago #54
Do you or can you qualify for SSI or SSDI? Hopefully, these cuts will be watered down to get through the senate. Doodley 18 hrs ago #52
I applied in August of 2023 so it's 21 months and counting, I got denied JMCKUSICK 16 hrs ago #56
They nearly always deny on first application. I recommend asking a no-fee-unless-you-win disability lawyer to help. Doodley 6 hrs ago #58
John, for what's worth... Alephy 18 hrs ago #53

brush

(59,936 posts)
2. I doubt it'll pass thru te Senate as is. There's talk of splitting it into 3 bills...
Thu May 22, 2025, 11:28 AM
Yesterday

Last edited Thu May 22, 2025, 04:16 PM - Edit history (1)

and who know which of those will pass and it impacts seniors negatively and they're a big factor in the repblican demographic.

JMCKUSICK

(2,396 posts)
3. I got a AARP membership invite
Thu May 22, 2025, 11:32 AM
Yesterday

In the mail yesterday, and it's remarkable how quiet they have been through this process, especially considering it is Medicaid that pays all nursing home bills once you spend down.
I will admit that I haven't researched them much lately, but this bill would surely scream Pick me pick me as one to fight against.
Must be afraid of trump too

haele

(14,217 posts)
13. Lol. 4k.
Thu May 22, 2025, 01:21 PM
Yesterday

And if they fall into the category of not paying taxes in general to begin with, with a minimum Medicare payment, what does a $4k deduction do for them?
That's the equivalent of a one legged person being told there's food for free if they're just willing to cross a busy street.

Tickle

(4,121 posts)
34. it works for me
Thu May 22, 2025, 03:11 PM
Yesterday

I usually end up paying taxes on my Social Security, so I’m just hoping to break even this time around. For others, depending on your income, you might actually get a refund when you file.

Wiz Imp

(5,085 posts)
36. an extra $4000 deduction would translate into a reduction of tax owed by $400 to $500 at most.
Thu May 22, 2025, 03:21 PM
Yesterday

Wiz Imp

(5,085 posts)
57. Yep. The whole thing is an attempt to fool the public into think they're getting a much better deal than they really are
Fri May 23, 2025, 09:32 AM
8 hrs ago

They say we'll give you an extra $4000 deduction and people think their taxes will get cut but $4000 not realizing that $4000 comes off their taxable income not their actual taxes. The tax rate is pretty small for most people on fixed incomes.

And the tiny tax cut that they may end up with will be more than offset by higher prices due to tariffs and inflation.

JMCKUSICK

(2,396 posts)
49. Right haele,
Thu May 22, 2025, 11:10 PM
18 hrs ago

You've touched on the greatest con in world history It's been working for 45 years and counting. "We're going to cut YOUR taxes"
Republicans have been talking to the Fox viewers like they're members of the club for decades and the rubes keep buying it election after election.
The party that has screwed workers in every way possible, owns workers because of that one slogan.

JMCKUSICK

(2,396 posts)
29. I saw that when I googled AARP
Thu May 22, 2025, 02:51 PM
Yesterday

And I was thoroughly disgusted that that's the best they can do with those millions of dollars they use to "Support Seniors"
AARP treats the very poor as badly as the worst republicans.

JMCKUSICK

(2,396 posts)
19. A major part of my fear
Thu May 22, 2025, 02:21 PM
Yesterday

Is how controlled these Republicans are by Trump. Never seen anything like it.
And it's that that assures me that what the Senate passes will be pretty much what the House passed with maybe a little lipstick on it.

Nanuke

(737 posts)
4. Oh John. Your despair is testimony that you are a deeply sensitive, smart and caring person. Hold steady to your worth.
Thu May 22, 2025, 11:33 AM
Yesterday

Let this dark cloud surrounding you lift away to the bright light that all of us here hold you in. Your daily affirmations are like a lifeline for us, and especially me. These staggering awful times with our screwed up government and policies are temporary. I believe you have hope and strength deep within you—if not for just one day at a time.

JMCKUSICK

(2,396 posts)
21. Thank you Nanuke,
Thu May 22, 2025, 02:26 PM
Yesterday

I've been struggling with this uncertainty since the election, and it's so damn hard to keep a smile on my face, while the demoralizing news keeps coming. It's not just the budget bill, it's how the government treats everyone, all the storm victims that are waiting for disaster declarations while Trump's callous administration disregards the real pain and loss of so many

bdamomma

(68,279 posts)
44. Thank you
Thu May 22, 2025, 06:36 PM
23 hrs ago

for the encouraging words, we are all in this together. This darkness will fade away, when we rise up and make our voices heard. Bullies never win.

Tickle

(4,121 posts)
7. I don't think he'll mess with senior benefits
Thu May 22, 2025, 12:03 PM
Yesterday

— at least, there’s no sign of that. From what I’ve read, the Medicaid changes are mostly aimed at people under 65. It’s more about adding work requirements and making sure folks re-certify each year to stay eligible.

synni

(335 posts)
11. It took me 21 years to get approved
Thu May 22, 2025, 01:15 PM
Yesterday

Yet I'm still scared of what this administration is doing.

Tickle

(4,121 posts)
35. you'll be getting one hell of a check!
Thu May 22, 2025, 03:13 PM
Yesterday

they pay you from the time you requested SSDI.

Cha

(310,975 posts)
55. Best of Luck getting your SSI
Fri May 23, 2025, 12:23 AM
17 hrs ago

ASAP, John. I have a friend in California who's been waiting for hers for quite awhile.. Not that long, though.

I'm so sorry for what you're going through.

SuzyandPuffpuff

(138 posts)
10. Ditto
Thu May 22, 2025, 12:27 PM
Yesterday

All I can say as apparently evil wins. But I personally will fight til my dying breath...I will not show fear to a media created...foul smelling self indulgent petulant man child ..he will never take my soul. Fuck that asshole dick

JMCKUSICK

(2,396 posts)
50. Speaking of fighting, I was so disappointed to
Thu May 22, 2025, 11:20 PM
18 hrs ago

Find out that there are no protests scheduled near me this weekend.
Forgive my frustration, but what, we can't mess with our holiday weekend?

JMCKUSICK

(2,396 posts)
14. I know you can relate XanaDUer2
Thu May 22, 2025, 01:41 PM
Yesterday

I really hope people can see how fragile a huge segment of society is

mvd

(65,645 posts)
16. Right there with you
Thu May 22, 2025, 01:48 PM
Yesterday

I depend on SNAP. I depend on Medicaid. I struggle mightily even with them. Have no idea what I would do if they were taken away. Use my mom as a dependent? Because I am not a senior or officially listed as disabled.

JMCKUSICK

(2,396 posts)
25. The thing that I'm also
Thu May 22, 2025, 02:34 PM
Yesterday

Struggling with is how oblivious I have been to these very issues at points in my younger life. It really reminds me how easy it is to take a comfortable place in life for granted while being so disconnected to the suffering around me unless I had first hand awareness.

SSJVegeta

(535 posts)
17. I really hope you are wrong about the Senate.
Thu May 22, 2025, 02:07 PM
Yesterday

But so far I can only count 3 remotely viable opponents to it, and that just isn't enough. It's such a shame -for many reasons of course, that Connelly had to die so quickly. Besides Collins, Murkowski and MAYBE Hawley, the only other person I can see as a far distant remote possibility, is Jim Justice. Oh and I don't see Rand Paul honestly supporting it. But I can see him plugging his nose and supporting it, and ignoring the enormous consequences to avoid the temporary political backlash he would get from his party.

JMCKUSICK

(2,396 posts)
42. For obvious reasons I hope so too SSJVegeta.
Thu May 22, 2025, 06:07 PM
23 hrs ago

It's just that we have no history of anyone standing up even for principles, never mind for murderous policy.

Wiz Imp

(5,085 posts)
20. Just hours after House passage, senators are already talking about big changes.
Thu May 22, 2025, 02:22 PM
Yesterday
https://www.politico.com/live-updates/2025/05/22/congress/trump-bill-senate-rewrite-00365731

Senate GOP preps for ‘one big, beautiful’ rewrite

Senate Republicans are vowing they will make changes to President Donald Trump’s “big, beautiful bill” after it passed the House early Thursday morning.

While the end product is likely to contain sweeping areas of overlap with the proposal negotiated by Speaker Mike Johnson, GOP senators made clear Thursday that the House bill can’t pass without major changes. Some of the member demands are contradictory, with some fiscal hawks demanding beefed-up spending reductions while others want softening of the House’s Medicaid language and to preserve more green-energy incentives.

One of the Republicans he believes is in his corner — Sen. Rand Paul (R-Ky.) — said Thursday that while he supports the party’s tax agenda, he cannot support the bill if it includes a debt ceiling hike. Republicans want to use the party-line bill to increase the debt ceiling until after the 2026 election without having to give concessions to Democrats.

Trump spoke to one of the potential holdouts — Sen. Josh Hawley (R-Mo.) — Wednesday night, though their conversation also touched on unrelated issues like disaster aid. Two others — Sens. Susan Collins (R-Maine) and Lisa Murkowski (R-Alaska) said they expected significant changes.


Make no mistake, this thing will eventually pass, but we're a long way from knowing what the final product will look like.

From the Politico article, Rand Paul is expected to be a definite NO vote and Ron Johnson may be as well. Add in Hawley, Collins & Murkowski who all apparently have significant issues with the House passed version and you have a pretty strong guarantee that the Senate will make changes which the House would then need to approve as well. I don't think we're very close to a final bill being signed into law anytime real soon.

JMCKUSICK

(2,396 posts)
22. I sure hope you're right Wiz Imp.
Thu May 22, 2025, 02:29 PM
Yesterday

I just have come to know that when it comes to having a spine against trump, they are sorely lacking.

Wiz Imp

(5,085 posts)
32. oh, make no mistake, Whatever eventually gets signed into law is going to be really awful
Thu May 22, 2025, 02:55 PM
Yesterday

But for now, at least, there remains at least a slight bit of hope that it might not be quite as bad as what the House just passed.

gab13by13

(28,210 posts)
26. A bit of good news,
Thu May 22, 2025, 02:38 PM
Yesterday

Rand Paul says he is a solid No.

Haven't heard from Susan Collins yet.

JMCKUSICK

(2,396 posts)
38. Thank you Meowmee,
Thu May 22, 2025, 03:50 PM
Yesterday

Unfortunately, the unrepresented among us will suffer the most, like usual. While we can hope to be spared the very worst of what's in this bill, most of it will become law and screw the poor, seniors, POC, children and women.
The have the recipe, now it's just a matter of reading the ingredients list.

Doodley

(10,911 posts)
52. Do you or can you qualify for SSI or SSDI? Hopefully, these cuts will be watered down to get through the senate.
Thu May 22, 2025, 11:40 PM
18 hrs ago

JMCKUSICK

(2,396 posts)
56. I applied in August of 2023 so it's 21 months and counting, I got denied
Fri May 23, 2025, 01:10 AM
16 hrs ago

in March so waiting on first appeal. (four unsuccessful back surgeries etc,,,)

Doodley

(10,911 posts)
58. They nearly always deny on first application. I recommend asking a no-fee-unless-you-win disability lawyer to help.
Fri May 23, 2025, 11:16 AM
6 hrs ago

It is hard to do it on your own, and it is a lot less stress to have somebody fighting for you. The judges try to trample on folk who aren't as prepared as a lawyer would be. It is a huge setback and demoralizing. You could potentially get a lump sum and SSI or SSID would put you in a much safer position. This would give you a lot of peace of mind. I am sorry you are so anxious about your situation. I can see why. Nobody in the richest country in the world should have to worry about this. My wife applied and was rejected twice. Then we got a specialist and it made a huge difference with a positive outcome. I believe the law company got 25% of the back pay as reimbursement.

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